wayne olsen
Caring For Connor Abseil Fighting Duchenne
Fundraising for Kent and Medway Charity Team
Story
Thanks for taking the time to visit my Just Giving page.
On 29 March 2013, a blood test revealed Connor had Duchenne Muscular Dystrophy (DMD), a rarer version of more widely known Muscular Dystrophy. Duchenne Muscular Dystrophy: Is the most common fatal genetic disorder diagnosed during early childhood, affecting approximately 1 out of every 3,500 boys and 20,000 babies born each year.Progressive proximal muscle weakness of the legs and pelvis associated with a loss of musclemass
is observed first. Eventually this weakness spreads to the arms, neck, and other areas. Early signs
may include enlargement of calf and deltoid muscles, low endurance, and difficulties in standing
unaided or inability to ascend staircases.
He has a tendency to fall down rather too often, tires easily and finds stairs a challenge.The terrible statistical prognosis is that he will be in a power wheelchair, full time by the age of 10 and no longer be with us by age 20.
At first it was a case of grieving, trying to get our heads around it. The dreams and visions of Connor’s life had been taken away. We all needed to do something positive and as a family came up with the Caring for Connor Campaign. On 5 April 2013, www.facebook.com/caringforconnorcampaign
was launched on Facebook.
Almost every day the Campaign gains new supporters who have joined forces with the family to raise awareness of, and ultimately find a cure for DMD. The goal is to give Connor the best possible chance, through a fighting fund, for the latest treatment. The Caring for Connor Campaign will need to be a long term project. So the family will always need new supporters and fundraising ideas. This is why they are always delighted when new people contact them ‘out of the blue’ with words of kindness, suggestions, donations, requests for sponsorship forms (because they are participating in a challenging activity) or to let them know of their plans to host a fundraising event in aid of Connor.
70 per cent of the funds will be going to Caring for Connor Campaign and 30 per cent to the Kent and Medway Charity Team to help stage the event.
Some of you cant make a donation but you can show your support by sharing and helping raise awareness.
Thank you.
Wayne Connors Dad