Arianas SQUASH TOURNAMENT for Cure DM..

adrian farmer is raising money for Cure DM

NICK HASTINGS MEMORIAL SQUASH.TOURNAMENT. · 15 August 2022

Cure DMVerified by JustGiving
RCN 1191217
A dedicated charity raising funds to provide support to those affected by Myotonic Dystrophy, their families and carers, particularly congenital and childhood onset. Organising get togethers for peer support and facilitating research into this rare disease, advocating for DM in science and medicine.

Story

Our daughter Ariana was born in 2016 at 29.weeks .. She was unable to breath on her own and had to be assisted by a ventilator ... Neither the doctors.or nurses knew why this was happening to her...  After some tests we heard the worst possible news .. 

Ariana was born with Congenial Myotonic Dystrophy (CMD) .. 25% of  children do not make it past there 1st birthday .. Ariana is now 5 and has daily struggles she can't walk or talk but is one of the most loving children and enjoys showing it to all who know her ..  There is no cure for this terrible infliction so every penny you give helps fund research and directly helps families who have to live with CMD ... 

Many thanks in advance .. 

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Donation summary

Total
£1,320.00
+ £178.75 Gift Aid
Online
£1,320.00
Offline
£0.00

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