adrian farmer

Arianas SQUASH TOURNAMENT for Cure DM..

Fundraising for Cure DM
£1,320
raised of £500 target
by 47 supporters
Cure DM

Verified by JustGiving

RCN 1191217
We raise funds in aid of Myotonic Dystrophy to support families and facilitate research

Story

Our daughter Ariana was born in 2016 at 29.weeks .. She was unable to breath on her own and had to be assisted by a ventilator ... Neither the doctors.or nurses knew why this was happening to her...  After some tests we heard the worst possible news .. 

Ariana was born with Congenial Myotonic Dystrophy (CMD) .. 25% of  children do not make it past there 1st birthday .. Ariana is now 5 and has daily struggles she can't walk or talk but is one of the most loving children and enjoys showing it to all who know her ..  There is no cure for this terrible infliction so every penny you give helps fund research and directly helps families who have to live with CMD ... 

Many thanks in advance .. 

About the charity

Cure DM

Verified by JustGiving

RCN 1191217
A dedicated charity raising funds to provide support to those affected by Myotonic Dystrophy, their families and carers, particularly congenital and childhood onset. Organising get togethers for peer support and facilitating research into this rare disease, advocating for DM in science and medicine.

Donation summary

Total raised
£1,320.00
+ £178.75 Gift Aid
Online donations
£1,320.00
Offline donations
£0.00

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