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Barth syndrome is a complex and life threatening genetic condition that affects the heart, immune system and growth. Our children and adults struggle with extreme fatigue, sudden heart arrhythmias and recurring infections. Help us to fund research and to find a cure for this devastating condition.
www.barthsyndrome.org.uk
info@barthsyndrome.org.uk
Barth Syndrome UK Registered charity number 1181830
"Honouring all who are affected xx"
Anonymous donated
£20.00 + £5.00 Gift Aid
"In loving memory of our beautiful grandson and shining star Sebastian George xx"
Alan & Kate donated
£200.00 + £50.00 Gift Aid
"In loving memory of our precious Grandson Sebastian George."
Grandpa Alan and Granny Kate donated
"Thank you for all that you do for our son and all our amazing boys & young men ❤️ Allanna, Tommy, Jay & Alfie xx"
Tommy Anderson donated
£50.00 + £12.50 Gift Aid
"Great cause."
Colin Heap donated
£10.00 + £2.50 Gift Aid
"In memory of our beautiful grandson Sebastian George"
ALAN & KATE donated
Sam Laing has raised $2,783.47 so far
I'm We are walking St Cuthberts Way (100km) in <48hrs for Sam Laing because I want to honour the memory of my superhero Joshy
Sharon Cotterill has raised $1,908.43 so far
I'm walking 2.62 miles in the garden for 10 days for Sharon Cotterill because they are looking for a cure for Barth Syndrome
Sharon Cotterill has raised $1,785.17 so far
I'm I am holding a charity night to raise vital funds for Sharon Cotterill because they support our Barth Warrior, William.
Stefan Fields has raised $1,290.25 so far
I'm In memory of my precious Rosa Genevieve for Stefan Fields because they need funds for research and to find a cure.
Katie Wass has raised $1,171.83 so far
I'm Raising money and awareness for Katie Wass because one day we hope there is a cure....
Charlotte Dyer has raised $557.24 so far
The Dyers raise money for Barth Syndrome UK
