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Barth Syndrome UK

We support families & fund research to improve the lives of affected people

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About Barth Syndrome UK

Barth syndrome is a complex and life threatening genetic condition that affects the heart, immune system and growth. Our children and adults struggle with extreme fatigue, sudden heart arrhythmias and recurring infections. Help us to fund research and to find a cure for this devastating condition.

www.barthsyndrome.org.uk

info@barthsyndrome.org.uk

Barth Syndrome UK Registered charity number 1181830

Donation message

"RIP Elaine. Such a lovely lovely lady.xxx"

Rosie Spikings donated

£15.00 + £3.75 Gift Aid

Donation message

"Elaine was such a beautiful lady and we feel very sad at her loss. Love and thoughts to Tony and all the family."

Tim and Laura Dean donated

£50.00 + £12.50 Gift Aid

Donation message

"Blessed to have had you as a friend. I will treasure the memories we shared. XX"

Helen Arch donated

£50.00 + £0.00 Gift Aid

Donation message

"You will be remembered as lovely Elaine, the one who welcomed everyone, such a caring nature that touched many hearts. You will be sadly missed Rest in peace lovely lady, love from Michelle ❤️"

Michelle Atkinson donated

£50.00 + £12.50 Gift Aid

Donation message

"All our love to you all. Words are not enough when a loved one gains their wings. Thinking of you all at such a sad time. Matt, Michelle, Charley, Lauren & Sam xxxx"

Michelle Jacquest donated

£25.00 + £6.25 Gift Aid

Donation message

"In honour of my dear sweet Cousin Elaine. My life was richer because of her. She was an inspiration and a thoroughly wonderful kind lady. Rest in Peace Sweetheart. Until we have a family re-union."

Vicky Hukins donated

£50.00 + £12.50 Gift Aid

Russell Stevens has raised $5,791.19 so far

I'm Russell is Swimming the English Channel for Russell Stevens because

204 Supporters

Steve Cotterill has raised $2,020.74 so far

I'm I am having a bash at Ultra marathons for Steve Cotterill because they look after our Barth Warrior William.

58 Supporters

Sharon Cotterill has raised $1,798.82 so far

I'm walking 2.62 miles in the garden for 10 days for Sharon Cotterill because they are looking for a cure for Barth Syndrome

87 Supporters

Sharon Cotterill has raised $1,639.79 so far

I'm I am holding a charity night to raise vital funds for Sharon Cotterill because they support our Barth Warrior, William.

1 Supporters

Katie Wass has raised $1,076.40 so far

I'm Raising money and awareness for Katie Wass because one day we hope there is a cure....

44 Supporters

Sharon Cotterill has raised $950.44 so far

Barth Birthday Raffle 2020

3 Supporters