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Barth syndrome is a complex and life threatening genetic condition that affects the heart, immune system and growth. Our children and adults struggle with extreme fatigue, sudden heart arrhythmias and recurring infections. Help us to fund research and to find a cure for this devastating condition.
www.barthsyndrome.org.uk
info@barthsyndrome.org.uk
Barth Syndrome UK Registered charity number 1181830
"Keep up all the wonderful work that BST and BSF do for everyone affected by Barth syndrome and their wider families. I know how much difference it has made to many wonderful and deserving people."
Colin Steward donated
£200.00 + £50.00 Gift Aid
"In loving memory of our beautiful grandson Sebastian."
Grandpa Alan & Granny Kate donated
"For Laura xx "
Paula donated
£10.00 + £2.50 Gift Aid
"Honouring all who are affected xx"
Anonymous donated
£20.00 + £5.00 Gift Aid
"In loving memory of our beautiful grandson and shining star Sebastian George xx"
Alan & Kate donated
"In loving memory of our precious Grandson Sebastian George."
Grandpa Alan and Granny Kate donated
Russell Stevens has raised $6,832.28 so far
I'm Russell is Swimming the English Channel for Russell Stevens because
Sam Laing has raised $3,016.44 so far
I'm We are walking St Cuthberts Way (100km) in <48hrs for Sam Laing because I want to honour the memory of my superhero Joshy
Steve Cotterill has raised $2,384.01 so far
I'm I am having a bash at Ultra marathons for Steve Cotterill because they look after our Barth Warrior William.
Sharon Cotterill has raised $2,122.20 so far
I'm walking 2.62 miles in the garden for 10 days for Sharon Cotterill because they are looking for a cure for Barth Syndrome
Sharon Cotterill has raised $1,934.58 so far
I'm I am holding a charity night to raise vital funds for Sharon Cotterill because they support our Barth Warrior, William.
Katie Wass has raised $1,269.91 so far
I'm Raising money and awareness for Katie Wass because one day we hope there is a cure....
