MY STORY

I have now ran several charity runs dressed as a baby, raising lots of money and covering over 100 miles.

My wife is friends with Ambers mother and I felt I had to help in now what is my speciality...  THE BIG BABY RUN...

This is AMBERS STORY

Amber is 5 years old and when she was 18 months old was diagnosed with Spastic Diplegia Cerebral Palsy. 

Parts of her brain are damaged effecting her legs so she cannot stand or walk and on most occasions very stiff and tight and are very painful, meaning she has to use a walking frame and a wheelchair to get around (and has a nickname of speedy)

She love's life and has always got a smile on her face but most of all she would love to be able to enjoy playing with her friends and 2 big brothers.  She also would love to do gymnastics with the ribbons but most of all, to be able to get around the house all by herself and go and do things all on her own. 

Using Ambers words "I don't want my walking frame or wheelchair anymore I just want to walk like everyone else".

There is an operation she can have called Selective Dorsal Rhizotomy (SDR) that will take away all the tightness, stiffness and pain and will help her to take her very first steps. With this operation and lots and lots of physiotherapy and lots of exercise she will one day be able to walk on her own.

The operation is very expensive and will need lots of care afterwards. Whilst it will not take the cerebral palsy away, it will make her life better,  take away the pain and help her do all the things she can't do now. 

Please help me raise money for AMBERS operation

Neil

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