THANK YOU TO EVERYONE WHO HAS DONATED, WE HAVE SMASHED OUR ORIGINAL TARGET. THIS MEANS SO MUCH TO OUR SMALL CHARITY, THANK YOU FOR SUPPORTING OUR 5 RUNNERS!!

The 1p36 Family Trust is a registered charity devoted to supporting children and adults affected by 1P36 Deletion Syndrome and their families in the UK, by arranging conferences to share research and best practises concerning management of symptoms, treatment and also sharing educational content about 1P36 Deletion Syndrome.

The next conference will be held in Scotland, the trustees are currently finalising the plans for the biennial conference. We will be inviting guest speakers from the UK and USA to speak on different conditions related to 1p36 Deletion Syndrome. We also have plans for a sibling day out, mum's and dad's nights and a family farewell party!

​We hope to see you there and will update you more information soon!