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Our campaign is now complete. 5 supporters helped us raise £901.00

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Closed 30/06/2020
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Closed 30/06/2020

Pachyonychia Congenita (PC) is a ultra rare skin disorder characterized by painful calluses and blisters on the soles of the feet, thickened nails and cysts. PC Project Europe is a SCIO SC046480 that works with PC Project a 501(c)3 US public charity to better serve patients internationally.

Story

2020 France PC Patient Support Meeting - June 4-6, 2020 - Golden Tulip Paris Aéroport CDG Villepinte Hotel

Thursday, June 4th - welcome dinner starts at 6:30 pm - Friday, June 5th- all day presentations, discussions and meals - Saturday, June 6th - half day meeting with the closing luncheon at 12:30 pm

Meeting information and scholarship application are available at https://www.pachyonychia.org/2020PSM

PAY MEETING FEES - Before April 1, 2020: 90 per person 15 years or over; 40 per child ages 2-15. - After April 1, 2020, the fee increases to 120 per person 15 years or over, 60 per child ages 2-15.

Meeting fees are waived for a PC patient and one family member attending the PC Patient Support Meeting for the first time. PC Project and sponsors pay 80% of the meeting costs which include the meeting room, equipment rental fees and food including Thursday dinner, Friday lunch and dinner, and Saturday lunch as well as break food. Breakfast is included in hotel room costs.

If you need assistance in completing the forms or if you have any questions, please contact Pachyonychia Congenita Project at info@pachyonychia.org

Help Pachyonychia Congenita Project Europe (PC Project Europe)

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Donation summary

Total
£900.07
+ £75.00 Gift Aid
Online
£900.07
Offline
£0.00
Direct
£900.07
Fundraisers
£0.00

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