Watch Jonathan's video here https://www.facebook.com/ActionDuchenne/posts/2305544816183414.

Jonathan lived until he was 27. And we mean lived. Some people with Duchenne muscular dystrophy have longer, but many don't.

When Jonathan was born, life expectancy for people living with Duchenne was late teens; it is now almost 30. But this isn't nearly enough.

With your support we can change this.

Action Duchenne want a world where people's lives are no longer limited by Duchenne and Becker muscular dystrophy.

We support thousands of families like Jonathan's, all the way through from diagnosis. We fund pioneering research into treatments, educate and empower our community, and campaign for a more inclusive society.

This Christmas we are asking you to join our Duchenne family and donate to help families like Jonathan's.

Your donations can help us ensure the 2,500 people living with Duchenne in this country, and their families, get to live their lives to the fullest, and enjoy Christmas for many years to come.

Donate to this page, or by text:

DCHN79 £(amount) to 70070