We did it!

Our campaign is now complete. 34 supporters helped us raise £1,696.00

Visit the charity's profile
Closed 07/10/2022
Cure EB

Cure EB Butterfly Run 2022

A celebration of inclusivity on 25th September 2022 at London's Olympic Park, inviting people of all abilities to complete a 1k, 5k or 10k race in aid of Cure EB.
Donations cannot currently be made to this page
Event: Butterfly Run 2022, on 25 September 2022
Closed on 07/10/2022
RCN 1158672

Be a fundraiser

The campaign has now expired but it's not too late to support this charity.

Visit the charity's profile


The Butterfly Run is back! After a break due to the pandemic, we are delighted to again be hosting our celebration of inclusivity at the Olympic Park in London on Sunday 25th September 2022. IT'S TIME TO FLY!

We are encouraging as many people of all abilities to run, walk, wheel, or whatever they can do to complete a 1k, 5k or 10k race - and raise funds to cure EB!

Join our campaign to help all butterfly children fly free - donate or create your own fundraising page today.

Why Butterfly Run?

Cure EB funds medical research to find a cure for epidermolysis bullosa (EB), a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as 'Butterfly Children' as their skin is said to be as 'fragile as a butterfly's wings'.

What we want most is for children and adults to fly free from the pain of EB and make the blisters and wounds stop.

To find out more about us and the research we fund, visit www.cure-eb.org

About the charity

Cure EB

Verified by JustGiving

RCN 1158672
Cure EB (formerly the Sohana Research Fund) exists to find a cure for Epidermolysis Bullosa- a very painful genetic skin blistering condition that leads to malignant skin cancer in young adulthood.

Donation summary

Total raised
+ £306.00 Gift Aid
Online donations
Offline donations
Direct donations
Donations via fundraisers

* Charities pay a small fee for our service. Find out how much it is and what we do for it.