0

%

£18,232.21

raised of
£22,000
target by 340 supporters
Just4Children

Surgery for Michael - Chiari Malformation

Just4Children are raising money for Michael to attend a Chiari specialist centre in Barcelona for surgery.
Closes on 01/01/2023
Charity Registration No: 1164473

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Story

Michael lives in East Kilbride aged 9. When Michael had an accident at school in 2016, it was discovered he had Chiari Malformation after a CT Scan.

Chiari Malformation is when the cerebellar tonsils herniate outside the skull, leading to crowding of the brain stem and in the majority of cases blockages of CSF fluid. This leads to a multitude of symptoms, headaches, migraines, widespread body pain, dizziness, trouble swallowing, numbness, loss of feeling in arms or legs, loss of bladder or bowel control, sleep apnea or in extreme cases, paralysis or death. This condition is one lacking in research or Chiari specialists in Scotland and the UK.

Michael has a severe herniation of 21mm, with brainstem compression and a CSF blockage. He also suffers from headaches and sleep apnea, which is likely being caused by the compression of the brain stem. In the UK the only treatment available for patients with Chiari, is the invasive craniectomy procedure, known as Decompression, where part of the skull is removed and a patch can be sewn to expand the space. This comes with many risks and complications and months of recovery. However, it does not reverse any nerve damage and may not cure any of the current symptoms. It is used to stop the worsening of symptoms and this is what is being offered now for Michael.

In Barcelona, the Chiari Institute has introduced a new method which is less invasive and has more favourable results. More recently, a 9-year-old girl had deteriorated to the point she had to rely on a wheelchair. Having this surgery meant she was up on her feet the next day, and walking within 5 days, whilst the NHS had said there was nothing else they could do. There are many other success stories.

The Chiari Institute in Barcelona have advised that this treatment could help halt symptoms for Michael so that he would not then require to have brain surgery in the UK.

Please give your support so that Michael can have this chance to lead a fuller life.

Thank you

Info for donors

Photos

1

Fundraisers

3

user

Catriona Calvert

£140.00

raised by 9 supporters

0%
user

donna mcnulty

£70.00

raised by 8 supporters

0%
user

Michelle mcgregor

£25.00

raised by 3 supporters

Supporters

337

Anonymous

1 day ago

For my basketball photos ??

£20.00

+ £5 Gift Aid

Duncan Smillie

2 days ago

Go Michael! Go Rocks ??

£82.00

+ £20.5 Gift Aid

Linsey

3 days ago

Keep shooting those hoops Mikey! ?? Lots of love Linsey

£50.00

+ £12.5 Gift Aid

Anonymous

3 days ago

God Bless you Michael , will keep you and your family in our prayers

Tracey Stenhouse

3 days ago

£20.00

+ £5 Gift Aid

About the charity

Just4Children
Just4Children

Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Charity Registration No: 1164473

http://www.just4children.org

Donation summary

Total raised

£18,232.21

+ £2,286.76 Gift Aid

Direct Donations

£17,865.21

Donations via Fundraisers

£235.00

Offline donations

£132.00
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Surgery for Michael - Chiari Malformation

Just4Children