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Closed 22/02/2023
The AADC Research Trust

AADCd 3 WISHES for 2023 Campaign

We have 3 WISHES to make come true in 2023; universally accessible Gene Therapy, global newborn screening and continued research for a CURE! Please help us continue our critical advocacy by DONATING and SHARING our campaign far and wide! Thank you.
£285
raised of £25,000 target
Donations cannot currently be made to this page
Closed on 22/02/2023
RCN 1114367

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Story

AADCd 3 WISHES Challenge for 2023!

Its 2023 and we are entering our 17th year as The AADC Research Trust! It has been an incredible journey from those early days in 2006 when we first established our mission to raise awareness, fund critical disease research and support our amazing AADCd children and families around the world.

Your enduring support has enabled us to reach a position rarely achieved by ultra-rare disease, setting a benchmark for other rare disease charities.

Together we have achieved an incredible legacy and we are now in the position where there are not one, but TWO, Gene Therapy treatments available for our AADCd children! However, that legacy isnt complete yet as we still have much work to do. And this is where our 3 WISHES Challenge for 2023 can help.

Lets make 2023 a year to remember

WISH 1 : ensure these lifechanging treatments are accessible to ALL AADCd children, no matter where they live or their financial situation.

WISH 2 : continue in our efforts to explore and fund critical disease research in the pursuit of a CURE. We are extremely proud to have participated in the development and delivery of GT, yet we will not be complacent and remain determined to explore other treatments and push the boundaries of science and medical research to find it.

WISH 3 : bring AADCd newborn screening programmes across the world so that early diagnosis becomes routine, ensuring that our children get the right treatment from the earliest age.

ULTIMATE WISH : to relieve EVERY child and young adult from the suffering endured by with this devastatingly cruel ultra-rare brain disorder by finding a CURE!

To make our 2023 WISHES come true, to achieve our goals, to find that CURE, we need your HELP

Please help us to continue advocating for you by taking part in our AADCd 3 WISHES Challenge for 2023

The challenge is to raise enough funds to ensure the charity can continue its ground-breaking journey, its innovative advocacy, its enduring determination to instigate meaningful change for our AADCd children and their families by making WISHES come true.

Can you help us by DONATING and SHARING this campaign page with your family, friends, neighbours, work colleagues, local media, and anyone else who may be able to help?

Could you ask them to DONATE and SHARE with as many people as they can within their own networks?

SMALL donations from MANY can accumulate a significant source of income, but we need to reach and engage as many people as we possibly can.

We are a global family, and we hope our AADCd supporters across the world will be able to help us achieve a global campaign!

Lets make those WISHES come true!

About the charity

The AADC Research Trust

Verified by JustGiving

RCN 1114367
AADC deficiency is a rare disabling brain disease. More than 100 children in 30 countries have been identified with the disease. It's proved fatal for some of them. The AADC Research Trust is a children's charity funding research, supporting affected families and promoting global disease awareness.

Donation summary

Total raised
£284.32
+ £25.00 Gift Aid
Online donations
£284.32
Offline donations
£0.00
Direct donations
£284.32
Donations via fundraisers
£0.00

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