0

%

£61,471.09

raised of
£60,000
target by 423 supporters
Just4Children

A Better Life for Ben

Just4Children are fundraising for a life changing operation called SDR (Selective Dorsal Rhizotomy) and post-op physiotherapy and rehabilitation, which will give Ben the chance of a better life.
Closes on 01/01/2022
Charity Registration No: 1164473

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Story

Ben is aged 9 and lives in Sheringham in Norfolk.

Ben and his identical twin Alex were born prematurely at 29 weeks in Bolton, Lancashire. Both boys were seriously ill and heartbreakingly Alex passed away after just 4 days. Ben continued to fight and after 10 weeks in Neonatal care at Bolton and Trafford hospitals, he finally came home on oxygen. He was diagnosed with Spastic Diplegia Cerebral Palsy at 2 years old.

Ben is a happy, friendly boy, who takes a great interest in the world around him. However, as he grows the muscles in his legs become tighter, causing discomfort & muscle spasms, hindering his mobility and independence. Until 2 years ago, Ben was able to walk with a gait trainer, but unfortunately, as he has grown, he has now lost the ability. Ben is now a full-time wheelchair user.

Ben has recently been accepted for an operation at Great Ormond Street Hospital called SDR. This will significantly improve his quality of life by removing the spasticity and therefore helping to manage the discomfort he lives with on a daily basis. It will increase his mobility and allow him the opportunity to perform the daily activities that most of us take for granted. We have explored every option available to help Ben and have been advised that we need to take action before he hits puberty. We have exhausted all non-surgical options and now need to have SDR which will provide a long term solution to manage his spasticity.

Last year, the NHS began providing SDR to children graded GMFCS Levels 2 & 3. Ben has been graded a Level 4. Whilst he is eligible for the operation it will not be funded by the NHS. Currently at GOSH this is £35,000. A condition of this offer is that we will need to self-fund a minimum of 2 years intensive physiotherapy, and any equipment required for his rehabilitation, which will be around £25,000.

Please help us to raise £60,000 to allow Ben to live a more comfortable, dignified and independent life.

Thank you

Info for donors

Photos

1

Fundraisers

14

user

James Spencer Ashworth

£3,055.00

raised by 44 supporters

0%
user

Benjamin Harvey

£2,550.00

raised by 54 supporters

0%
user

Libby Birts

£1,478.43

raised by 46 supporters

0%
user

Jane Steed

£1,032.00

raised by 45 supporters

0%
user

Paul Connor

£544.13

raised by 31 supporters

0%
Supporters

409

Anonymous

11 days ago

With very best wishes.

£40.00

+ £10 Gift Aid

user

Belinda Taylor

1 month ago

Donations raised from collection tin at The Dun Cow in Salthouse. Many thanks to all those who donated & to The Dun Cow for your support.

£151.42

user

Belinda Taylor

1 month ago

Donations raised from collection tin at Mary Jane's Fish Bar in Cromer. Many thanks to all those who donated & for your support.

£31.83

user

Belinda Taylor

1 month ago

Donations from collection tin at Carlton Lodge Dental Care Group. Many thanks to all those who donated & to Carlton Lodge for your support.

£80.92

user

Belinda Taylor

1 month ago

Donations from collection tin at Trendies Beach Cafe in Sheringham. Thank you very much for your support & to all those who donated.

£64.38

About the charity

Just4Children
Just4Children

Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Charity Registration No: 1164473

http://www.just4children.org

Donation summary

Total raised

£61,471.09

+ £7,900.77 Gift Aid

Direct Donations

£36,116.66

Donations via Fundraisers

£11,230.66

Offline donations

£14,123.77
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A Better Life for Ben

Just4Children