Duchenne UK

Action for Zach

Action for Zach is a Family & Friends Fund supporting Duchenne UK
RCN 1147094

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Our son, Zach, was born a healthy baby in 2014. He was a happy, easy-going baby and toddler who loved vehicles and construction, and although Zach maybe wasnt as quick on his feet as other boys his age, he appeared to be developing normally. We had never heard of Duchenne Muscular Dystrophy when Zach was diagnosed at age four, and learning about the condition came as a great shock to us.

Zach turned seven in September 2021, and he makes us laugh every day. He loves drawing, learning about the world and playing computer games. He says that when he grows up, he wants to be an architect! It is important to us that we are always positive about Zachs future, especially when we see some young men with DMD out there achieving so much.

We follow news on new and upcoming DMD treatments closely, and are hopeful that one day the prognosis for children with DMD will be very different, and may even come in time to change our sons life that is why we decided to raise money for research. Duchenne UK are an amazing organisation and their family funds are a great way to raise money as a family. We have been very impressed by how much control families can have over where the funds that they raise can go, and the endless dedication of the people who run the charity.

If you would like to donate to research into new Duchenne treatments through our family fund, any amount would be greatly appreciated.

Thank you!

Zach's parents, Jade and David

About the charity

Duchenne UK

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RCN 1147094
As the leading Duchenne muscular dystrophy (DMD) charity in the UK, we want to find effective treatments for DMD and end its devastating impact. We’re going further than anyone has before, and we’re doing it faster, because this generation of people living with DMD can’t wait.

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