Campaign by Story
The Alex TLC Community Weekend brings the international leukodystrophy medical and research community together with the patients and families they're trying to help.
We've been hosting our Community Weekends since 2008 and it's so lovely to watch the children play and grow up together. It's great to meet old and new friends in a relaxed atmosphere.
I thought the event was brilliant. It was great to see so many individuals and families having the time to talk to others and learn from different professionals. Despite the challenges faced by many there, there was a real sense of positivity as people made connections and shared their stories.
The weekend provides a unique opportunity for professionals to see the impact of leukodystrophy first-hand, and for patients and their families to interact with and learn from the professionals who are trying to make their lives better.
Coping with a rare disease can be incredibly isolating, so please help us to ensure that as many people affected by leukodystrophy as possible can attend and spend time with others who can help them to cope and help them to hope.
Please give today if you can. Thank you.