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Our campaign is now complete. 66 supporters helped us raise £17,555.00

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Closed 07/06/2023
Alex, The Leukodystrophy Charity

Alex TLC 2023 Community Weekend Appeal

Help us to bring the leukodystrophy community together in person for the first time since 2018!
raised of £15,000 target
by 66 supporters
Donations cannot currently be made to this page
Closed on 07/06/2023
RCN 1106008

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The Alex TLC Community Weekend brings the international leukodystrophy medical and research community together with the patients and families they're trying to help.

We've been hosting our Community Weekends since 2008 and it's so lovely to watch the children play and grow up together. It's great to meet old and new friends in a relaxed atmosphere.

The community weekend is an invaluable way of allowing sufferers and their families to meet up. Families can offer both practical and emotional support to each other. Its great to get together.

The weekend provides a unique opportunity for professionals to see the impact of leukodystrophy first-hand, and for patients and their families to interact with and learn from the professionals who are trying to make their lives better.

You can help us to ensure that as many people affected by leukodystrophy as possible can attend and spend time with other who can help them to cope and help them to hope.

Please give today if you can. Thank you.

About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
+ £1,746.75 Gift Aid
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