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Amazing Maisie's Mission

After Maisie’s diagnosis with rare LMNA-related muscular dystrophy, her family launched Amazing Maisie’s Mission to raise awareness and fund research, helping Maisie and other children affected by this rare condition.

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Muscular Dystrophy UK Verified by JustGiving
RCN 205395 (England & Wales), SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Story

Amazing Maisie’s Mission was created by Laura and Chris after their daughter, Maisie, was diagnosed with rare LMNA-related muscular dystrophy in December 2025. Until then, Maisie had been hitting every milestone, walking before she turned one and full of confidence and energy. Just before her second birthday, her family noticed small changes in the way she stood and walked, leading to months of tests, appointments and uncertainty before finally receiving a diagnosis.

Despite the challenges she faces, Maisie is thriving. She’s fiercely independent, full of personality and works incredibly hard in physiotherapy every day. Through this journey, her family found comfort and hope through Muscular Dystrophy UK, but also realised how little awareness and research exists for rare conditions like LMNA. By supporting Amazing Maisie’s Mission, you’ll help fund vital research and bring hope for Maisie and other children affected by LMNA-related muscular dystrophy.

Donation summary

Total
£370.00
+ £87.50 Gift Aid
Online
£370.00
Offline
£0.00
Direct
£250.00
Fundraisers
£120.00

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