A Wish for William

Organised by Just4Children

Please make Williams wish come true by helping him achieve everything that he can in his life. He may have a rare condition but with your help and his determination anything is possible.

Closes 01/01/2026

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Just4ChildrenVerified by JustGiving
RCN 1164473
Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Story

Hello everyone, my name is William. I am 6 and live in Cornwall. I was diagnosed in August 2018 with a very rare genetic condition called Allan-Herndon-Dudley syndrome (AHDS). It is so rare that it is basically unknown to most medical professionals. It is estimated that approximately 320 boys are living with AHDS around the world.

This condition means that I have a quirky gene that makes my muscles weak and underdeveloped resulting in me being very limited in what I can do. I am making slow progress because I am very determined but also because I have started on a trial drug called Triac. I will, however, need constant therapy for the foreseeable future to help me get to where I need to be.

Unfortunately, these therapies aren't free, or cheap but I would love to be able to access more physical, occupational and speech therapy. including an intensive course called CME MEDEK which is to help children with gross motor and global delay.

Any contribution, no matter how little, could make all the difference.

Thank you

Love William xxx

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Donation summary

Total
£37,103.02
+ £4,950.80 Gift Aid
Online
£33,075.21
Offline
£4,027.81
Direct
£25,729.00
Fundraisers
£7,346.21

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