A NF2 community charity fundraising event

NF2 Awareness Day is on 22nd May 2026 and NF Awareness month is throughout May, join us in raising funds for NF2 research with our BIG May 5K event

Our unique points are that everyone in our organisation has LIVED EXPERIENCE of NF2, we speak to those within our community to gauge exactly where we need to go and exactly what we need to do. Our insights are critical in bringing new treatments top the NF2 community

We are all volunteers. Any funds raised and spent go towards our mission – for new treatments to NF2. We are solely focused on NF2 – Awareness, advocacy and research for patients and their families and we fund NF2 research projects all under way with the ultimate aim of finding better treatments for those living with NF2. NF2 affects approximately 1 in 35,000 people and causes tumours to grow along the nervous system

5K too much of a challenge???? – then scale it back to what is achievable for you, 5 lengths in the pool, 5 laps around your local park. 500 steps or 5000 steps – We would love you to take part with whatever you feel you can manage – seriously if that’s just 5 cups of tea then its all relative