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To understand the reality of Bruck Syndrome, you only need to hear the story of eight-year-old Elisa.
Elisa lives with a severe form of Bruck Syndrome. She experiences extreme bone fragility, leading to multiple, recurrent fractures. In just the last 15 months, her tiny body has endured fractures to her femurs, shoulders, pelvis, and tibia, requiring multiple intense surgeries, including the rodding and nailing of her bones .
The physical toll has been immense. Over the past year, Elisa’s mobility has significantly declined. She experiences severe, ongoing pain and is now fully reliant on a wheelchair, unable to bear her own weight .
Despite her complex medical condition and the intense pain she endures, Elisa shows remarkable emotional strength, positivity, and resilience. She is bright, eager to learn, and always tries to find a way to engage with her world.
Yet, the constant cycle of fractures, hospital admissions, surgeries, and long recoveries has severely interrupted her childhood. She misses her friends and her education.
Elisa’s journey highlights the profound challenges families face: the need for specialised equipment, the fight for appropriate educational support, the necessity of complex, multi-disciplinary medical care involving dozens of specialists, and the heavy emotional toll .