A ray of bright sunshine entered our hearts on 20th September 2019 and has changed our lives forever.

Charlie was born, full term, with a bleed in his brain and no pulse. After a terrifying 7-minutes of resuscitation, his heart finally began to beat. As a result, Charlie suffered from a Grade 3 HIE, meaning his struggle had only just begun. A painstaking recovery over the next 4 weeks in Addenbrooks, Cambridge and the tireless efforts of the NICU team meant that he was able to transfer to a hospital in his birth town of Ipswich and would later be able to come home.

Charlie, although high spirited and joyful, had a very bumpy start in life. MRI results showed widespread brain damage caused by the HIE (lack of oxygen to the brain) and the Inter-cranial bleed. From this Charlie now suffers from a very long list of problems. Just some of the conditions he has to contend with daily are epilepsy, infantile spasms, dystonia, global developmental delay, pseudimonas colonisation of lungs and gastro-oesophageal disease and cerebral palsy.

Charlie struggles with mobility and communication. He is non-verbal and fully PEG fed via MIC-KEY button.

Our aim is to raise money for Just4Children to fund additional physiotherapy sessions and equipment for Charlie. There is so much equipment and tech out there that will help Charlie to go about daily life, from Eye Gazers (for communication via eye movement) to off road buggy, electric wheelchairs, wheel chair accessible vehicles, the list goes on.

We also have looked into intensive physiotherapy which is abroad. This all works out very pricey.

In addition to the 14 professionals and equipment funded by the NHS; Charlie has private physio sessions which has made enormous improvement to his movement and quality of life.

The equipment and therapy sessions we have are expensive and Charlie is growing bigger all the time. The money we have only goes so far and so we have made this page in the hope others might help us support Charlie in his goals and development. For those who know our story and for those generous and kind enough to be able to spare any amount, however small, your support will allow Charlie to continue to grow and enjoy life in the fullest.

We have tried to provide as much as we can for him and will continue fundraising events but there are only so many hours in the day, many of them spent looking after our cheerful, happy boy. If you can help in any way at all, you will be helping to make a massive difference to the lives of not just Charlie, but his whole family.

Info for donors