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Cosmic Superstars supporting the CGD Society

Campaign by CGD Society

Supporting the CGD Society to provide a lifeline for young people and families affected by the life-threatening and life-limiting rare condition, Chronic Granulomatous Disorder

The Chronic Granulomatous Disorder (CGD) Society is the leading global charity dedicated to providing information and support to all those affected by CGD. The charity funds a clinical nurse specialist at Great Ormond Street Hospital for Children and responds to enquires from all over the world.

Story

Cosmic Superstars are absolutely thrilled to be supporting, championing and part of something so meaningful. The CGD Society isn’t just a charity, it is one of two charities in the whole wide world for CGD and it’s a lifeline for young people and their families facing tough times.

CGD stands for Chronic Granulomatous Disorder. It is a life-threatening and life-limiting condition. It is a rare condition. In the UK, CGD affects about eight people in a million.

The science involved in the condition is very interesting, the research and new treatments are always on the horizon to understand the condition better. Exciting gene replacement therapy trials are underway at the moment, and there’s hope this may find a cure. However, more work is needed before it can become a regular treatment option.

Taken from the CGD website, "research into CGD doesn’t just help people with this rare genetic condition. Every breakthrough scientists make could potentially help millions as any advances could shed light on how other genetic disorders work. (Reviewed by the Medical Advisory Panel, February 2020)." For more info check out: https://cgdsociety.org

Let’s shout it from the rooftops and make a real difference. Here’s to creating a better world, and reaching for the stars while we’re at it.

Donation summary

Total
£90.00
+ £10.00 Gift Aid
Online
£90.00
Offline
£0.00
Direct
£90.00
Fundraisers
£0.00

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