0

%

£5,586.36

raised of
£20,000
target by 19 supporters
Charlie Gard Foundation

Daniel's Hydrotherapy Pool Campaign

Daniel suffers from a mitochondrial disorder and also cerebral palsy. We're raising funds for a hydrotherapy pool for Daniel, which will help him develop his muscle tone which he so desperately needs to ensure he has the very best quality of life.
Charity Registration No: 1176344

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Story

Daniel lives in Barnsley, a small town in Yorkshire, and was thought to be a happy healthy baby. At four months old it was suspected something wasn't right with his development and after months of appointments and visits to many hospitals Daniel was diagnosed with a mitochondrial disorder, for which we are awaiting a full diagnosis. He has cerebral palsy, his brain is damaged in three areas and he's failing to thrive. He hasn't gained much weight in over twelve months and he's struggling to stay at 9kg. His 3rd birthday is in September 2019, however, Daniel's muscle tone and development are that of a 0-6-month-old baby.

As a family we have tried to get him everything he needs but the cost is way beyond what we can do without support. We need to go private for his care as the wait is too long for a diagnosis and the current gene testing programme has stopped so we are hopeful this will enable us to find out what we are dealing with and help understand his needs for the future but this comes at a high cost. We are struggling to find the funds to get the equipment needed to make him comfortable day by day. Daniel cannot sit, stand or eat orally so he is peg fed. Daniel finds it hard to travel anywhere as he finds travelling in the car distressing even the shortest journeys to hospital are too hard for him so Daniel spends a lot of time at home. Daniel loves the outdoors and swimming/hydrotherapy but due to his MRSA it's difficult to take him anywhere, and we are now saving to get him a hydrotherapy pool of his own.

We are hoping to raise funds via this page for the hydrotherapy pool to help build his muscle tone and ease his pain. He will require a large operation if his hips don't form the muscle tone needed to hold them in place, which is normally gained by standing and he struggles to hold his head fully without support. With the help of hydrotherapy his muscles will strengthen and help him to do this for longer periods throughout the day.

We want to support Daniel so he is comfortable, has a good quality of life and enjoys normal day-to-day things as any child should.

We just want him to be happy and smile every day, feel loved, and get the best care we can for him whilst taking every day at a time and hoping the use of his own hydrotherapy pool will enable this to happen.

With your support and the support of the Charlie Gard Foundation we hope to achieve this.

Thank you for your support xx

Photos

4

Fundraisers

4

user

Stephanie Roundsmith

£2,176.00

raised by 28 supporters

0%
user

Stephanie Roundsmith

£1,626.76

raised by 9 supporters

0%
user

Stephanie Roundsmith

£815.00

raised by 7 supporters

0%
user

Mathew Hodgson

£10.00

raised by 1 supporter

0%
Supporters

15

user

Nicci Rush

6 hours ago

£610.00

user

Mandy Hodson

1 day ago

£20.00

user

Paul Norris

3 days ago

What a gorgeous little man!

£10.00

+ £2.5 Gift Aid

Anonymous

19 days ago

£30.00

user

Nicci Rush

1 month ago

from customers and friends at the commercial inn barnsley

£30.00

About the charity

Charlie Gard Foundation
Charlie Gard Foundation

The Charlie Gard Foundation is one of the UK’s leading charities dedicated to fighting mitochondrial disease. The foundation raises awareness for the condition, invests in world-class research into viable treatments, and supports families whose lives have been touched by this incurable disease.

Charity Registration No: 1176344

http://www.thecharliegardfoundation.org

Donation summary

Total raised

£5,586.36

+ £127.75 Gift Aid

Direct Donations

£958.60

Donations via Fundraisers

£4,627.76

Offline donations

£0.00
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Daniel's Hydrotherapy Pool Campaign

Charlie Gard Foundation