Eliza's Wish for Balance

Just4Children need to raise funds for post op therapies following SDR surgery for Eliza aged 5 from Haywards Heath in West Sussex.
raised of £20,000 target
by 89 supporters
Closes on 01/07/2026
RCN 1164473

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At the age of 6 months we noticed that Eliza wasn't developing as quickly as her big sister had. By 7 months alarm bells were ringing and we spoke to our Health Visitor. The Health Visitor referred us to a physiotherapist who checked Eliza's legs and along with a paediatric doctor suggested a hip x-ray and, if that was clear an MRI of her brain and spine. The hip x-ray was clear but unfortunately the MRI showed abnormalities of the brain. In other words Eliza had suffered brain damage.

In June 2014 we received the devastating news that Eliza had Spastic Diplegia Cerebral Palsy, affecting both of her legs.

Since Eliza first learnt to weight bear she has often fallen and struggles to balance and do some simple every day tasks.

Selective Dorsal Rhizotomy (SDR) is an operation developed by a Dr Park in the USA. It is performed to release the spasticity in a patients limbs, for Eliza her legs. It would give her balance as well as preventing premature ageing and other conditions that may come about due to her asymmetric gait.

Eliza has always been a very happy and strong willed little girl. She has shown great resilience in every day situations but now she is turning 6 we can see the frustrations of being "different" from her big sister and peers. She so desperately wants to have the chance to be like them.

When the team at Great Ormond St Hospital said that Eliza would be the perfect candidate for the life changing operation we were truly overwhelmed. Although the NHS fund the operation itself and some physio afterwards we know through speaking to other parents of children who have had SDR that the more therapy you do and the longer you can do it for the better the long term outcome will be. These various therapies do not come cheap.

As parents we want the very best for our child and it would mean the absolute world to us to be able to raise sufficient funds for Just4Children so that Eliza can have the very best chance for a successful recovery.

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About the charity


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RCN 1164473
Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

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