Emma helped to found 'My Mito Mission' in July 2017 - a charity raising awareness and hope for a cure for mitochondrial disease. The vision being that those affected by mito could have their own local, personalised missions helped by their families, friends and communities, under one national umbrella. Making a positive difference with their own stories ... in the face of an lllness which can be so disempowering.
Emma had become ill herself at 21 and discovered it was a progressive illness affecting the mitochondria - the 'battery packs' in our cells, meaning the body doesn't produce enough energy and gradually shuts down. There is currently no treatment and no cure.
She died unexpectedly soon in September '17, aged just 28, and the charity's very first mission - Emma's Mito Mission - was sadly launched at her funeral. Emma's courage, kindness and positivity continues to be the inspiration behind our work.
Emma would be thrilled that we have built a mito community with so many missions now around the UK.
Find our more about Emma, her story with mito and the charity here:
https://www.mymitomission.uk/emmas-mito-mission-brighouse/