Ewen is a happy and restless boy who runs everywhere. He loves trucks, cars and blowing dandelions. But this amazing little boy had his childhood interrupted by childhood cancer when he was diagnosed with high-risk neuroblastoma at the age of three-and-a-half.
Since then, Ewen has endured chemotherapy, surgery, bone marrow transplant and radiotherapy, and is now receiving immunotherapy. Even if Ewen makes it to full remission, as we all hope, there is still a big chance of relapse. If this happens, his survival rate dramatically drops to less than 10%.
That's why Ewen's parents, Emily and Owen, are fundraising with Solving Kids' Cancer to give him the best chance of living cancer-free. They are appealing for your help to raise £227,000 for Ewen to access a clinical trial in New York that they hope will reduce the chances of his cancer coming back.
"We cannot be any more grateful to each of you for helping us to reach this target," says Emily.
"I should have paid more attention when Ewen's weight and height did not increase for half a year," says Emily, blaming herself when she has no reason to.
Ewen was a very healthy child until he was diagnosed. But he started to get fevers and could not squat to pick up his toys. His symptoms would come and go, and any scans and tests didnt reveal the tumour.
Finally, a bone marrow test was done. "We still remember when the doctor was talking with us, the nurse asked her to take a call. The doctor came back and asked us to go to another room. We immediately felt fear. We were told about the bad cells that had been identified in the bone marrow."
There was an 11cm tumour in his belly and the cancer cells had spread to Ewen's skull, femur, and bone marrow.
Ewen was then admitted to hospital to start his frontline treatment. After 100 days of high-dose chemotherapy, he was ready for surgery which lasted for eight hours. Then a series of other treatments followed.
Ewen experienced may side effects during these treatments, and he became fidgety and irritable due to the morphine. "It's heart-breaking when your little boy cannot tell you how uncomfortable he is, but only wants a hug," say Emily and Owen. During the chemotherapies and bone marrow transplant, Ewen could not eat and felt extreme pain that even morphine could not release. "But every time he recovered from the side effects, he became the naughty and fun kid we know and love."
During his bone marrow transplant, this brave little boy endured 30 days in an isolated room, and he understood that he was fighting with small monsters in his body.
Ewen's fundraising campaign
Ewen's parents, Emily and Owen, are fundraising for further treatment to keep the cancer away. They are appealing for your help to raise £227,000 for Ewen to receive the Bivalent Vaccine clinical trial at Memorial Sloan-Kettering Cancer Center in New York they hope will stop his cancer from returning. It could be his best chance of growing up.
How you can help
There are many ways you can help Ewen: by making a personal donation; holding a fundraising event; getting sponsored to take on a challenge; or even by sharing his story on social media.
To donate by text, send "EWEN" followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It won't matter if you leave a space before the number, if you include a '£' sign or whether you use upper or lower case.
If you'd like to help to support Ewen's campaign, please get in touch with the fundraising team on 0207 284 0800 and firstname.lastname@example.org