July 19th might be Freedom Day for some

but for children and adults with Rett Syndrome

the restrictions remain.

The last eighteen months has shown us the incredible power of medical research. Without Covid research, none of the freedom we are seeing today would be possible.

Covid or no Covid, children and adults with Rett Syndrome are not free.

They live with a debilitating brain disorder which has robbed them, right around the age that most children are learning to walk and talk, of their mobility, their speech and the use of their hands. There is no approved treatment to help slow the progression of the disease or to help with any of the many difficult symptoms.

But we are on the edge of a new era in Rett Syndrome. Research funded by Reverse Rett over the last decade has led to the development of human clinical trials for gene therapy, now due to start within the year.

The UKs only Rett Syndrome clinical treatment and research Centre has kept working at 100% capacity, with 100% of core-funding honoured by Reverse Rett despite a tremendous drop in income due to the pandemic.

The latest UK clinical trial of a potential treatment for Rett symptoms is now at capacity at trial sites in London and Manchester with recruitment and retention support from Reverse Rett.

With in person fundraising events only just starting to open up again, we need support to ensure our vital work continues. There is much ahead of us to be positive about and we don't want to lose momentum now!

Can you give £5 in support of a future #FreeFromRett