Every two years, our families gather for the CFC International Family Medical Conference, and lives are forever changed. Not only do our families meet the amazing community of those caring for a loved one with CFC syndrome, they gather together to share, laugh, and make memories for a lifetime.
But, the conference isn't just about the moments of joy our families feel - it's also about the moments they meet a clinical expert in CFC syndrome for the first time, when they learn of the medical and research advancement being made in this rare disease, and the moments they add their child to ongoing research that is saving lives.
Our families are the heart of everything we do, but our donors give us life, hope, and possibility. For every $250 our families raise, they will be able to pay for one more member of their family to attend the conference, registration free!