Harry was two and half when we found out he had a condition called Duchenne Muscular Dystrophy.

Myself and my husband had never heard of this dreadful condition and sat in disbelief as we were told to go away and enjoy your son, there is not a cure. After months of tears and feeling like all our hopes and dreams had been taken away for the future we decided enough was enough we needed to do something.

So we decided to start fundraising and it was the best decision we made. We have taken part in the Duchenne Dash and I have run the London Marathon. We have held lots of events which family and friends have enjoyed but most of all we have raised money to fund vital research into the condition. When we met Alex Johnson and Emily Crossley founders of Duchenne UK and saw how determined and dedicated they were to finding a treatment this gave us the hope and strength to keep going. We are not going to give up on our son and we decided to join them in the fight to save our sons.

Harry turned 10 in June 2021. He enjoys swimming, horse riding, art and crafts and building with his lego and is a very happy boy. He enjoys school and playing with his younger sister Grace.

We do live for the moment. We try to spend as much time with our children as we can as we all don't know what the future holds. We are trying to give our son the best life possible and will continue to fight with Duchenne UK until we find a cure.