Just4Children

Help Sacha Show DNA is Not Destiny

Just4Children are raising funds for Sacha to have specialist therapies to help him learn to communicate and play.
£30,063
raised of £30,000 target
Closes on 01/06/2026
RCN 1164473

Be a fundraiser

Create your own fundraising page and help support this cause.

Start fundraising

Story

Sacha is almost 6 and lives in Brighton. He has a very rare genetic disorder called 2q37 deletion syndrome, which means he is likely to grow up with cognitive disabilities and physical difficulties. But the range of possible outcomes is wide, and there are many factors that can improve or worsen the prognosis.

Defying expectations, Sacha responded remarkably well to intensive blocks of paediatric therapy at NAPA Center: the first enabled him to stand for the first time; the second got him walking; in the last, he learned to climb and descend stairs. And more recently, Floortime therapy has helped to lay some crucial foundations for communication. Every round of intensive therapy has been a tangible boost not only to Sacha's development, but also to his happiness and confidence. Without these therapies, it would have been a much longer struggle for Sacha to reach such milestones.

Sacha is currently non-verbal and finds communication in general extremely challenging. As he gets older, this is causing him to get increasingly frustrated. While he is able to use his hands for some things like feeding, he has always struggled to use them in play, and this has had a serious impact on his development. Communication often follows upon the development of play skills, so these two difficulties are linked. We are thus fundraising for further rounds of intensive therapy, targeting fine motor skills, play skills, social interaction and communication.

For more information on Sacha, 2q37, and how funds will be spent, please visit here

Info for donors

About the charity

Just4Children

Verified by JustGiving

RCN 1164473
Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Donation summary

Total raised
£30,062.12
+ £7,131.52 Gift Aid
Online donations
£29,363.89
Offline donations
£698.23
Direct donations
£27,631.12
Donations via fundraisers
£1,732.77

* Charities pay a small fee for our service. Find out how much it is and what we do for it.