Make a splash. Raise your voice. Change lives.

Right now, thousands of people across the UK are living with or with the impacts of Inflammatory Neuropathies, rare and often misunderstood conditions that can take away mobility, independence, and confidence.

At Inflammatory Neuropathies UK, we hear the same thing again and again:

“I felt invisible. No one understood what I was going through.~

We want to change that, and this is where you come in.

This May is GBS and CIDP Awareness Month, and we want to use it to raise some cash to help us help people.

Our IN the Water campaign is all about doing something bold, visible, and just a little bit uncomfortable, because sometime that’s what it takes to get attention.

Take the plunge.

Get in the sea, a lake, a lido, or even your local paddling pool.

It’s not about being extreme. It’s about being seen. Post what you are up to on socials, tell your friends, get in the press, and maybe ask for some sposnsorship.

Because every photo, every post, every conversation helps shine a light on conditions that are too often overlooked.

If the water isn't for you, or you want to do something different, then maybe Share and Shout

Awareness doesn’t happen quietly, so our Share and Shout campaign is about using your voice, whether this is online, at work, with friends, or wherever you are.

Share a story.

Start a conversation.

Tell people why this matters.

Because the more people understand GBS and CIDP (and other Inflammatory Neuropathies), the faster we can push for better diagnosis, better care, and better support.

Living with an Inflammatory Neuropathy can mean long delays to diagnosis, limited treatment options, and feeling like you’re facing it alone.

Your fundraising helps us to:

Support people and families when they need it most

Provide trusted information and guidance

Campaign for faster diagnosis and better services

Build a community where no one feels invisible

There’s no “right” way to take part.

You can:

Take on your own IN the Water challenge

Organise something with friends, family, or colleagues

Go big, go small, just make it meaningful to you

So, let’s make some noise, and spread the word. After all, we are IN this together.

Start your fundraiser today. Share it. Shout about it. And help make Inflammatory Neuropathies impossible to ignore.