We are so sad to have lost our beautiful sister and Louis inspirational rockstar mother. We are going to continue her dedication to him by continuing with his therapies.

Louis is a gorgeous and courageous eight year old. He was born with a very rare genetic disorder called Congenital Disorder of Glycosylation (CDG), a relatively new condition only medically recognised in the 1980s.

With extremely limited guidance or therapeutic support from the NHS, we started the Love for Louis campaign to raise funds for the life-changing therapy and support we need for Louis to reach his potential.

Louis is already benefitting from a wide range of therapies including Conductive Education, Vojta therapy, hippotherapy, hydrotherapy and physiotherapy. In the five years since we started private therapies, Louis has accomplished more than we ever thought possible and he continues to astound the professionals who work with him. The progress is slow but steady and with the right level of therapy we can help Louis learn to walk and talk.

If you feel willing and able to support a small boy with big challenges to have the best shot at life, then please support us here.