Welcome to Minnie's Miracle Fund campaign page. We are Mark and Caroline Fogg, proud parents of Frank and Minnie.
Our daughter Minnie was diagnosed with Leber's Congenital Amaurosis (LCA) in October 2018 at just 3 months old. LCA is an inherited eye condition which affects the retina (photographic plate) at the back of the eye meaning images don't get sent to the brain properly. We registered Minnie as blind in December 2018 and it broke our hearts for her.
We took some time to get our heads round and wanted to do something positive.
So.... as a new years resolution we decided we want to raise as much money as possible to fund research into LCA to find treatments and ultimately a cure for this horrid condition.
I, (Caroline) decided to start with a sponsored run and I contacted Fight for Sight having read up on the organisation online. I asked if I could run for them and Beth who I liased with was very nice and helpful. She sent me a running vest and asked if I would share the reason why I'd chosen Fight for Sight as the charity I wanted to run for. I briefly explained about Minnie on an email and Beth responded sending me some information on Family Funds. You can find them on the Fight for Sight website. They are amazing things! Special funds set up by families affected by sight disorders to raise money for the specific condition that has affected their family member.
We were thinking of setting up a charity in Minnie's name but this is the perfect avenue for us. All money raised by us is ring fenced and used to fund the absolute best research available into Minnie's condition. Fight for Sight have the knowledge, experience, contacts and expertise that we need to ensure the very best of the best projects are selected for every penny we raise.
Fight for Sight are pleased to have us on board and having done our research, we really believe that this is the perfect avenue for us as a family to do something positive and proactive to help Minnie. We are very excited about it!
We've set up a page on Instagram @minnie_vision and a Facebook page Minnies Miracle to share Minnie's story and to aid our mission to raise awareness. Please give her a follow and a like!
We have hosted a few events now and continue to do so, details are posted on Minnies Facebook page.
If you would like to help for example by running an event (coffee morning, games nights, golf days, dress down at work etc), doing something sponsored (walk, run, swim, cycle, silence) or managing a collection box please get in touch with either Rachel (email@example.com) or with Caroline through one of Minnies pages as we'd gladly welcome any help and support you can offer.
Please please dig deep and support this incredible cause to help Minnie and all other sufferers of LCA. We really do appreciate any support you can offer.
A huge thank you for reading and in advance for any fundraising or donations you do/give.