Myla is aged 2 years from Uttoxeter in Staffs. She was born at 25 Weeks + 2 Days at 780g (1 lbs 11 oz). Myla had a 14 week stay in neonatal care including an 8 week stay in Leicester, 4 weeks in Derby and a further 2 weeks in Derby. During Myla's Neonatal journey she had many hurdles to overcome including Sepsis, a bleed on the brain, multiple failed extubations, 5 Blood transfusions, suspected Meningitis, as well as the constant battle of trying to lower her oxygen requirement and breathe independently.

Myla was discharged on the 5th of January 2023.

In July 2023 we noticed Myla was becoming less active and started to seemingly move backwards in her development. This was put down to viruses going around at the time. However, sickness started occurring after feeds, gradually building to unmanageable levels. Myla was then hospitalised in August/September 2023 with Hypercalcemia. Hypercalcemia in babies has strong links with a failure to thrive. We spent 3 weeks getting Myla back on track and growing again.

Unfortunately, a major side effect from the hypercalcemia was Myla lost all muscle tone and was diagnosed with hypotonia. This really had a negative regression on her development, which is very rare once treated for the condition.

Myla wasn’t thriving, in fact she was just like a 3 month old baby, at the age of one. We knew Myla had to of overcome a lot of health problems but we were definitely concerned about how things we looking. We endured lots of appointments trying to work out why Myla was not moving forward. Sam, Myla and myself underwent a full genetic screening to check if Myla had any other condition affecting her development.

Myla had an MRI March 2024 and from this we now know Myla has a short and narrow corpus collosum which is called Hypoplasia of the corpus callosum.

From this moment we knew we needed to do something to help Myla. The NHS has their lane but this needed specific treatment to really push Myla, giving her the best possible future.

We attend a clinic in Birkenhead called Blue Skies ahead, and also a lovely lady in Stone called Agi (very special children). They both use different techniques; one DMI and the other CME. We have been working with these therapists since April 2024 and the difference in Myla is remarkable.

August 2024 Myla finally passed her sleep study and after 675 days she was finally able to breathe by herself without requiring oxygen. Myla is now able to sit unaided, worm crawl, babbles and she can say a few words.

Myla is the happiest, smiliest little girl. She is a social butterfly. She really does love being around people, and her love for animals is adorable.

Myla has been diagnosed with global developmental delay. With everything that we are doing to help her development we hope one day she catches up with her peers.

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