Since 2008, groups of supporters have joined the annual sponsored Myotubular Trust Hope Walks. We all walk with the same hope in mind...raising research funds to find a treatment for myotubular and centronuclear myopathy.

Myotubular (centronuclear) myopathy is a rare and devastating muscle weakness, affecting mainly boys, from birth. It severely affects the muscles used to swallow and breathe. These babies & children are at a constant risk of dying, and usually from complications due to simple colds and coughs from which they are too weak to recover.

There is no public funding available to the Trust for the condition - the research that has been funded is all thanks to the support of those living with the condition, and their families and friends. We simply wouldn't be able to continue to fund world-class research projects without our supporters.

Thanks for helping us in our journey to bring forward the day when there is a cure or treatment for everybody living with this condition.

100% of your donation will be used to fund future research projects to find a cure or treatment - we raise all of our running costs independently.

Thanks again for your support,

The Myotubular Trust Team