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Our campaign is now complete. 9 supporters helped us raise £145.00

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Closed 22/10/2023

Annual NCBRS Virtual 5K 2023

It's back for the third year running! Lace up your shoes and join us for our annual NCBRS virtual 5K, celebrating #GlobalNCBRSAwarenessDay on Monday, October 9th 2023...

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Annual NCBRS Virtual 5K 2023! · 25 September 2023 to 22 October 2023 ·

Closed 22/10/2023

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OUR VISION: To create a global community where families, healthcare professionals and researchers work together to ensure that every person diagnosed with Nicolaides-Baraitser Syndrome has every opportunity to reach their full potential. OUR MISSION: The NCBRS Worldwide Foundation is a nonprofit organisation that aims to support and educate families, carers and professionals who work with them. Together we will work to promote awareness and understanding of the syndrome. We will advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments.

Story

It's back for the third year running! Lace up your shoes and join us for our annual NCBRS virtual 5K, celebrating ​#GlobalNCBRSAwarenessDay... Help us to raise awareness of Nicolaides Baraitser Syndrome within our local and wider communities, and help us to raise funds so we can continue to support our global NCBRS family.

There are many ways in which you can participate, you can walk, run, jog, cycle, treadmill at the gym plus many other ways (you decide) from wherever you are located around the globe. We encourage you, your family and your friends to get out between Monday, September 25th and Sunday, October 22nd 2023 to complete your virtual 5K. This is a great way to get outdoors and have fun with your family and friends, all whilst supporting the NCBRS Worldwide Foundation and our global NCBRS family.

We urge you to post pictures and videos of you, your family and your friends participating in the virtual 5K on FaceBook, Instagram & Twitter using the hashtags #NCBRS, #NCBRSRare, #WalkTogether4NCBRS and #GlobalNCBRSAwarenessDay​, we would love to be able to see and share your pictures and videos. You can also go live on our Facebook page on the day/s you complete your 5K.

If you have any issues in completing your registration or with any other matter, please do not hesitate to contact us here...

Thank you for supporting our Annual NCBRS Virtual 5K, celebrating #GlobalNCBRSAwarenessDay on October 9th... As always, all proceeds will benefit those affected by NCBRS and support us in our work. Head on over to our Awareness Day Page to learn more about #GlobalNCBRSAwarenessDay...

Thank you to this community. Your stories are an amazing gift for a family who is struggling with a recent diagnosis. To each and every loved one who has opened up about their struggles and joy, I and I'm sure many others feel so much gratitude to hear your stories and feel less alone as a result.

Donation summary

Total
£145.00
Online
£145.00
Offline
£0.00
Direct
£0.00
Fundraisers
£145.00

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