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The Nemaline Myopathy Support Group community has been hearing of interesting and exciting advances in muscle disease research for a few years and would love to boost further projects and associated infrastructures to bring forward easier, quicker and cheaper diagnosis & treatments or cure. We hope you can help by donating whatever you can to our rare condition.
More information can be found at http://nemaline.org/
You can join the Facebook support group. https://www.facebook.com/groups/nemalinemyopathysupportgroup