Oscar and Sebastian Spink are identical twins from Lymm in Cheshire where they live with older sister Scarlett, mum and dad Kerry and Grant and their three dogs Pip, Bert and Ernie.

They were officially diagnosed in July 2019 with Facioscapulohumeral muscular dystrophy (FSHD).

While initially dealing with this diagnosis was a huge shock, the family work hard to keep a positive outlook – They’re helping to fund research into the boys’ condition by running a Family Fund and reaching out to others to get involved along the way too.

They have set a fundraising target of £45,000 and have already organised and taken part in a whole host of activities. These have included organising online bingo, auction and balloon race events, holding workplace coffee mornings, recruiting several runners for the London Marathon and Great North Run, taking part in Bake a Difference and Go Bright Days, and getting support from local businesses.