£35

raised by 3 supporters
My Mito Mission

Paige's Mito Mission

Paige's mission is to raise awareness, support, funds for research and hope for a cure for Paige - and everyone with mitochondrial disease. Research could also help millions affected by common conditions linked to mito. Please support us, thank you.
Charity Registration No: 1176616

Be a fundraiser

Create your own fundraising page and help support this cause

Story

Hello. Im Paige Koch, Im 3 and live in Belfast with my mummy, daddy, big sister Aimee Rose, 5 and baby sister Chloe,1. Some of my favourite things are being tickled, being with my sisters (who both love me to bits) and having fun and family time in my hydrotherapy hot tub. And I love, love, LOVE Peppa Pig!

Paiges mum, Josephine tells the familys journey with mito:

Paiges health problems began with having seizures at five weeks old. A muscle and skin biopsy early this year confirmed that she has a complex 1 mitochondrial disease respiratory defect, but as yet the exact gene that has caused it hasnt been identified.

It impacts on Paige in lots of ways. She tires easily and has her good and bad days. One day she could be falling all over the place and on others walking around fine. Paige has both hearing and sight loss, cant to speak, needs a feeding tube, has weakness on her left side and muscle tightness in her left leg. She gets chest infections regularly for which she needs nebulizer and inhalers. When Paige takes ill, it knocks her back quite a bit - but she always comes back fighting.

Our hope for Paiges is that treatments and a cure may be found so that mito will have less impact on her life going forward and allow her to live a full life. The more research into mitochondrial function, the more chance there is for treatments to be found ... not only for mito sufferers like Paige, but for the millions with the common conditions known to be linked to mito too.

Please help us raise awareness and funds for research in any way you can, thank you.

Josie Koch, Paiges Mum

September 2019

Photos

4

No fundraisers yet

Start fundraising to get the campaign going

 
 
 
Supporters

3

Peter and Christine Beal

1 month ago

Wishing you a happy birthday month Josie! xox

£20.00

+ £5 Gift Aid

Anonymous

1 month ago

user

Margaret McGarvey

1 month ago

To my gorgeous little Paige. How I wish I had that cure sweetheart. Sending lots of love as always. Margaret (admin)

£10.00

+ £2.5 Gift Aid

About the charity

My Mito Mission
My Mito Mission

Our missions are run by families affected by mitochondrial disease, mito for short. MILLIONS in the UK have illnesses which also involve mitochondrial damage - diabetes, MS, stroke, some cancers & many more. More research into mitochondrial disease could help so many, not just those with mito.

Charity Registration No: 1176616

http://mymitomission.uk

Donation summary

Total raised

£35.00

+ £7.50 Gift Aid

Direct Donations

£35.00

Donations via Fundraisers

£0.00

Offline donations

£0.00
Charities pay a small fee for our service. Find out how much it is and what we do for it.

Paige's Mito Mission

My Mito Mission