Pulmonary Fibrosis NI

Respite Facility (Puffin Lodge)

We have purchased our first respite facility and named it Puffin Lodge. Now that we have made the purchase it will require your donations and funding for the years ahead. This is a respite for sufferers of pulmonary fibrosis and their families.
£15,013
raised of £5,000 target
by 317 supporters
RCN NIC109094

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Story

Pulmonary Fibrosis is a terminal illness which causes many difficulties for sufferers and their caring families. It is almost impossible for families to take a break far from home. This is because many sufferers are tethered to their oxygen supply via tubing and have to carry an oxygen cylinder with them. There is no cure for this disease and in several cases (Idiopathic) there is no known cause. There are two medications available that can with some patients help slow down the progress of the fibrosis in their lungs, however, this comes with harsh side effects, requiring regular visits to use a toilet. It is for these reasons and many more than a decision was made to provide a respite facitliy in Northern Ireland to allow sufferers and their familes to have a break.

About the charity

Pulmonary Fibrosis NI

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RCN NIC109094
CARING-SHARING-SUPPORTING Patients and Carers in Northern Ireland; Pulmonary Fibrosis is a terminal condition and Idiopathic Pulmonary Fibrosis has no known cause or cure. We at The Northern Trust Pulmonary Fibrosis Support Group (NTPFSG) are here to provide support to sufferers of pulmonary fibrosis and their families from all across Northern Ireland; working to improve their quality of life. We provide practical support with day to day living. We help raise awareness and support research into improved outcomes and greater understanding of pulmonary fibrosis. We also provide a supportive place to come together to chat and socialise with a community that understands what it is like to live with pulmonary fibrosis. We have Ambassadors all across Northern Ireland who link with and assist their local pulmonary fibrosis community. We are a not for profit charity who have appointed Directors who give up their time freely and work collectively for the betterment of all pulmonary sufferers in Northern Ireland. Our President is Dr Eoin Murtagh (Respiratory Consultant) Antrim Area Hospital) and our Patron is Mrs Julie Hesmondhalgh The NTPFSG is involved with our politicians on the all party working group for lung health in Northern Ireland. We have contact with our Respiratory medical teams across the Health and Social Care Trusts to ensure that they are aware of the services we provide to sufferers and their families. If you feel we could help you then please contact us.

Donation summary

Total raised
£15,012.68
+ £2,491.17 Gift Aid
Online donations
£15,012.68
Offline donations
£0.00
Direct donations
£11,259.42
Donations via fundraisers
£3,753.26

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