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RACC - UK provides consultations, action plans, and emotional support to aid diagnosis and treatment pathways. We raise awareness and education about autoinflammatory conditions. We influence and participate in policy and research to improve the diagnosis and treatment of these rare disorders. We are guided by our core values of lived experience. We measure our impact by the number and quality of our consultations, the feedback from our families, the policies we contribute to, the stakeholders we engage with, and the hospitals we reach.
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