Reiko is our 6 year old daughter from Skegness in Lincolnshire, who unfortunately suffered brain damage caused by a lack of oxygen before or during her birth. This caused a condition called Periventricular Leukomalacia which has led to her having Spastic Quadriplegic Cerebral Palsy and also global development delay.
Having this means that all four of her limbs are affected. The muscles in her arms and legs are extremely tight and cause her to experience chronic pain every day.
Our daughter suffers pain we cannot begin to understand. She struggles to sleep through the night, relax and enjoy her life as she so desperately dreams to. Therefore, she is not able to do things most other children her age or younger can do. She can't crawl, stand, walk or even chase after her big brother Blake.
Reiko's fighting spirit has proved to be infectious. As a family we try our best doing physiotherapy, stretches and activities to help loosen her muscles.
We now desperately need help to get surgery, a life changing operation called Selective Dorsal Rhizotomy, which will dramatically change Reiko's life. Having this operation would be followed by a minimum of 18 months intensive rehabilitation, physiotherapy and use of specialist equipment is required.
Sadly, we have been told we cannot receive these treatments for Reiko on the NHS.
With this operation her quality of life will improve a lot, she will be pain free, she will sleep through the night, and it will improve the ease of her care forever.
Our daughter has the warmest smile you will ever see. As a family we want to give her the best possible life we can, but this is a cost we just cannot meet.
Please help Just4Children help Reiko.
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