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Remembering Alanah Rose Reay

Alanah was a beautiful bright happy baby girl, with so much love and happiness that she gave to everyone she met. We want to join together in her memory to raise funds and awareness for The Lily Foundation to help them find a cure for Mito.

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Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Story

Our beautiful Alanah Rose Reay was born on 27th March 2023.

In December 2023 she was sadly diagnosed with Leigh's syndrome, a type of mitochondrial. Sadly she lost her fight with the disease at just 15 months old on the 20th June 2024.

Alanah was a beautiful bright happy baby girl, with a smile that would light up the room. She had so much love and happiness that she gave to everyone she met. No obstacle got in her way and she was brave and fought Mito till the very end.

Alanah was a beautiful smiley happy girl who lit up any room she was in, she was known for her huge lashes and beautiful smile that reached her eyes. She was a true fighter and overcame everything life threw at her.

The hole that her passing has left in our hearts will never be replaced. Because of this, we want to make a difference in her memory. So we are asking everyone that knew and loved Alanah, to join together and raise funds for The Lily Foundation charity, to help them find a cure so that no other family has to go through what we have again.

We have started fundraising in memory of our little sunshine who lit up our world. But we don't want to stop here, why not do your own challenge or fundraising event in her memory in support of The Lily Foundation.

Donation summary

Total
£5,115.00
+ £1,026.25 Gift Aid
Online
£5,000.00
Offline
£0.00
Direct
£1,270.00
Fundraisers
£3,845.00

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