The Lily Foundation

Remembering Otto

In honour of Otto, we are raising money for The Lily Foundation. Their mission is to improve the lives of people affected by mitochondrial diseases, and ultimately find a cure. Please donate or take on your own challenge in his memory.
£125,720
raised of £100,000 target
by 2459 supporters
RCN 1122071

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Story

Otto was born on 3rd September 2022. Two weeks later he was rushed into hospital after multiple seizures and induced into a coma. Following many tests, Otto was diagnosed with a rare genetic metabolic mitochondrial condition, affecting just a handful of children worldwide.

Otto lived a happy life full of love. At just over four months old, Otto made his way to heaven. He passed away peacefully on 24th January 2023, being doted on with love and kisses.

In honour of our beautiful, brave baby boy, we are raising money for The Lily Foundation, the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe. Their mission is to improve the lives of people affected by mitochondrial diseases, while working towards a future where mitochondrial diseases can be effectively treated or cured.

Please donate anything and all that you can; we hope to find a cure and spread awareness of such an unknown and underfunded condition. How wonderful knowing that Ottos legacy has contributed to this.

Thank you in advance for your support and for choosing to remember Otto in this way.

His loving parents,

Millie & Tony

About the charity

The Lily Foundation

Verified by JustGiving

RCN 1122071
The Lily Foundation funds research into Mitochondrial Disease and other metabolic disorders. It also raises important awareness and supports those families who are affected with metabolic disorders.

Donation summary

Total raised
£125,719.15
+ £15,037.62 Gift Aid
Online donations
£96,579.15
Offline donations
£6,160.00
Direct donations
£5,484.13
Donations via fundraisers
£114,075.02

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