Our cheeky, smiley, happy, gorgeous Teddie was diagnosed with a mitochondrial disease in 2019, at just 2 years old. He sadly lost his battle to this awful disease in July 2025, at just 8 years old.

Teddie achieved so many things and reached so many milestones, milestones that medical professionals said he would never reach. Poor muscle tone didn’t stop Teddie. He would crawl around the house for hours, playing with his toys which was his favourite thing to do and often causing mischief, all with a cheeky smile. Teddie was non verbal but his smile spoke a thousand words.

Despite the hospital appointments and admissions, Teddie faced it all with a smile. His determination, courage and bravery is something that many adults can learn from in a life we all sometimes take for granted.

We as a family knew that Teddies condition was life limiting, but we never thought that the day would come where we would have to say goodbye to him, our brave boy. But, Teddie does what Teddie wants to do.

The Lily Foundation is a charity very close to our families hearts, a charity we are so very passionate about.