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Remembrance

Campaign by SOFT UK

Remembering Our Babies and Children – SOFT UK Every baby and child holds a special place in our hearts, and their lives, however long or short, will never be forgotten.

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SOFT UK was founded in 1990 by Christine Rose and Jenny Robbins. As mothers, they were unfortunate enough to discover first-hand the lack of support and information available to families affected by Patau’s syndrome (Trisomy 13), Edwards’ syndrome (Trisomy 18) and related disorders.

Story

Remembering Our Babies and Children – SOFT UK

Every baby and child holds a special place in our hearts, and their lives, however long or short, will never be forgotten.

At SOFT UK, we support families affected by Trisomy 13 (Patau’s syndrome) and Trisomy 18 (Edwards’ syndrome), including those navigating the heartbreak of losing their precious baby or child.

Our remembrance campaign offers families, friends and loved ones a meaningful way to honour a much-loved life while helping other families facing similar experiences.

By creating your own remembrance fundraising page linked to this campaign, you can celebrate your child’s memory, share their story and raise funds to support SOFT UK’s vital work. Every donation helps us provide emotional support, resources and opportunities for families to connect with others who understand their journey.

Every life matters. Every story deserves to be remembered. Every family deserves support.

Together, we can honour the memories of the babies and children we carry in our hearts, ensuring their lives continue to make a difference for families today and in the future.

In loving memory, always.

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