Exeter and District Kidney Patient Association

EDKPA Renal Ramble

Join our Renal Ramble fundraising charity walk along the Exeter Canal. Supporting local patients living with Kidney Disease Under the care of Royal Devon and Exeter NHS Foundation Trust (RD&E)
£275
raised
RCN 276981

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Story

There is no cure for kidney failure. 

 Dialysis is a lifeline for patients waiting for a transplant, which can take years. Not every patient is able to have a kidney transplant. Patients are on a special diet and are limited to how much fluid they may drink. 

 Dialysis is a constant, relentless and exhausting process and the average treatment lasts for 4 hours, at least 3 times per week. 

 Your donation will really help to make dialysis treatment for patients more tolerable, in turn improving their quality of life. 

See how we use your donations:-

Financial help

Provide emergency financial help for patients who go into renal failure quickly and cannot work.

Funding fares to allow patients in need of transport to attend essential hospital appointments and operations.

£10,000 per year to pay for professional advice to help patients regarding state benefits and debt management.

It can be surprising to learn that the NHS cannot provide everything required to meet the needs of all patients on dialysis.

£18,000 was paid by the EDKPA in the last 12 months on various items of equipment to support patients in dialysis at home and in hospital.

£650 per patient to assist with a drainage system for peritoneal dialysis machines at home.

£30-£40 for blood pressure machines for new patients

£4 per patient to hold their bloodlines clips whilst dialysing

Funding numerous TV sets and remote controls for inpatients of hospital wards and dialysis units.

£8000 + to allow patients in our area to have free access to the Kidney Beam exercise support programme.

£2000 to support patient events and leisure activities

About the charity

We pay for an Information and Advice Service with Exeter CAB, enabling members to have a bespoke service for dialysis/transplant patients. We do this as we have no social worker and patients can now get the best advice on a number of aspects of life on dialysis/post-transplant, including financial (e.g. benefits) and legal issues. We fund apart of CKD Clinical Nurse Specialist and Renal Young Adult/Transition Nurse) salary because we believe that her position is vital to enable people to manage their way through dialysis, and realise their potential. She hosts many events including activity breaks for members. ​We provide and replace televisions/remotes on the units - there are approx. 36 (Sid ward-Heavitree-Honiton-Barnstaple-Torbay).Remotes alone cost approx £1000 per year, including a rolling schedule of replacements (the NHS do not pay for televisions). We distribute a newsletter and maintain the EDKPAwebsite for renal patients. The newsletter is our main means of communicating with our members. Whilst we have cut costs as far as possible by sending this out by email some members still prefer hard copies with the additional costs that involves. We provide ​Social, fundraising and raising awareness events: For example, the summer party, organ awareness week and numerous other events. We also provide one-off purchases and grants e.g. the purchase of dialysis machine and other essential hospital equipment.

Donation summary

Total raised
£275.00
+ £66.25 Gift Aid
Online donations
£275.00
Offline donations
£0.00
Direct donations
£235.00
Donations via fundraisers
£40.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.