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Roya Kabuki - Prism the Gift Fund

Roya Kabuki Initiative

Roya Kabuki Friends & Family is a restricted fund under the auspices of Prism the Gift Fund (Charity no. 1099682)
Charity Registration No: 1099682

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Story

Bringing together the dream of Royas family and the dedication of the team at Boston Childrens Hospital sparked the creation of the Roya Kabuki Program. Holding the Kabuki Syndrome community at the heart of our efforts, we will make a positive impact in the lives of children and families across the world.

Using a patient centred approach in the clinic, we strive to provide high-quality care to children with Kabuki Syndrome. We perform cutting edge research in the laboratory to further understand the underlying mechanisms of Kabuki Syndrome.

As we integrate findings from both the clinic and the laboratory, we aim to raise awareness and education in both the medical and lay communities. Our ultimate goal is to develop specific therapies for patients with Kabuki Syndrome. This is our commitment to you, and we hope youll join us on this journey.

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About the charity

Roya Kabuki - Prism the Gift Fund
Roya Kabuki - Prism the Gift Fund

The Roya Kabuki Initiative at Boston Children’s Hospital is a restricted fund operating under the auspices of Prism the Gift Fund Registered Charity Number 1099682. The program provides clinical care, as well as cutting edge research to further understand the underlying mechanisms of Kabuki Syndrome

Charity Registration No: 1099682

http://www.royakabuki.org

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Roya Kabuki Initiative

Roya Kabuki - Prism the Gift Fund