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Our campaign is now complete. 31 supporters helped us raise £15,760.00

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Closed 28/08/2023
by 31 supporters
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Closed on 28/08/2023
RCN 1099682

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Bringing together the dream of Royas family and the dedication of the team at Boston Childrens Hospital sparked the creation of the Roya Kabuki Program. Holding the Kabuki Syndrome community at the heart of our efforts, we will make a positive impact in the lives of children and families across the world.

Using a patient centred approach in the clinic, we strive to provide high-quality care to children with Kabuki Syndrome. We perform cutting edge research in the laboratory to further understand the underlying mechanisms of Kabuki Syndrome.

As we integrate findings from both the clinic and the laboratory, we aim to raise awareness and education in both the medical and lay communities. Our ultimate goal is to develop specific therapies for patients with Kabuki Syndrome. This is our commitment to you, and we hope youll join us on this journey.

About the charity

Kabuki Syndrome is a rare genetic disorder that has a profound impact on individuals and their families. Kabuki Syndrome Foundation Family and Friends is a restricted fund operating under the auspices of Prism the Gift Fund Registered, Charity Number 1099682.

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