The Childhood Eye Cancer Trust (CHECT) is the UK's only charity dedicated to helping people affected by retinoblastoma (Rb), a rare form of eye cancer that affects babies and young children. We:
Provide support and information to families and individuals.
Fund research into the prevention and treatment of retinoblastoma.
Raise awareness among health professionals and the public.
Influence policy to improve services for patients.
There are only two centres in the UK that screen for, diagnose and treat Rb - Royal London Hospital and Birmingham Children's Hospital. We have a Support Worker based at each centre and in 2018
they carried out a total of 1011 face-to-face sessions.Most of these families will also receive ongoing support between clinic visits, including contact by telephone, email or social media.
"Just to say a big THANK YOU for everything you do for us..... and for just being there. We are lucky to have such a nice person in our lives."
CHECT offers support to every family in the UK following a diagnosis of retinoblastoma, and provides lifelong support for anyone affected from diagnosis, through teenage years and into adulthood.