We are 5 moms, united by the shared experience of having children with a rare life-threatening disease. United by love and resilience, we set out to create something extraordinary—a camp experience where our children and families can find a sense of belonging and support.

We know firsthand the emotional and physical toll these illnesses take. Too often, families like ours feel isolated. That’s why we are creating a space where families can connect, share their stories, and form lasting friendships with others who truly understand their challenges. We strive to build a place where no one would feel alone in their fight, offering strength, hope, and community.

Help us host this weekend! Your donation enables all campers and families to attend free of charge.

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JSSc (Juvenile Systemic Sclerosis) is rare, affecting about 2 out of every 100,000 children. It causes the formation of thick skin or scar tissue both inside and outside the body. Thickened skin on the outside can restrict a child's joint movement and flexibility. Inside the body, scar tissue may develop on vital organs such as the muscles, heart, lungs, kidneys, and digestive organs.

Localized scleroderma is a form of juvenile scleroderma. It often begins earlier in childhood and typically affects only the skin in one specific area of the body. In some cases, it can involve underlying structures in the head (such as the brain, eyes, and jaw) or in the arms and legs (including muscles, tendons, and joints). It rarely impacts internal organs like the heart or lungs.

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This weekend is hosted by The Painted Turtle, a year-round, life-changing environment and authentic camp experience for children with chronic and life-threatening illnesses. The Painted Turtle supports children’s medical needs, inspires them to reach beyond their illnesses, and provides care, education, and respite for their families. All campers and families attend completely free of charge.