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Closed 20/03/2024

Let's get it known in London!

We need your help to partner with with NHS Blood & Transplant to hold an event in the Houses of Parliament in March, to increase awareness of the need for plasma donations - used in IVIG - a Kawasaki Disease treatment.

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Closed 20/03/2024

Kawasaki disease is the leading cause of acquired heart disease in children in the UK and the western world. It's time we changed that. We have an enormous task to do. But we are going to do it. TOGETHER we will. Join us and help us protect tiny hearts. You can make a difference. Awareness of this often pernicious disease is currently poor. Slow diagnosis and delayed treatment of Kawasaki Disease can cause serious, life-long health issues. Children affected by Kawasaki Disease have excellent chances of a good recovery with timely diagnosis and the correct treatment. At Societi we know that recognising Kawasaki Disease early is THE transformational opportunity to prevent what can be devastating effects from Kawasaki Disease. Kawasaki Disease has lots of symptoms in common with other childhood illnesses so it is often misdiagnosed - this means lifelong heart damage for too many children. Each year in the UK there are more cases of Kawasaki Disease than bacterial meningitis! Everyone would spot meningitis and know what to do, because of brilliant awareness raising work by MRT. We need everyone to recognise Kawasaki Disease too.

Story

We are thrilled to announce that, as part of our national awareness campaign, we will be partnering with NHS Blood & Transplant to hold an event in the Houses of Parliament in March, to increase awareness of the need for plasma donations. Kawasaki Disease treatment, IVIG, is a treatment made from blood plasma, so donations are VITAL to help protect tiny hearts of the future.

NHSBT invited us to work them them after successful joint projects in the past. Whilst they are meeting the majority of the event costs, we’ll need some new resources to make the most of the event, for Kawasaki Disease awareness. For this we need YOUR help. Can you donate or fundraise? We have set up this dedicated JustGiving fundraising page where you can HELP us to grow MP awareness of Kawasaki Disease and it’s all important treatment!

LET’S WORK TOGETHER TO ENSURE TINY HEARTS OF THE FUTURE ARE PROTECTED!

Help Societi, The UK Foundation for Kawasaki Disease

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